tricky, lucky day


this afternoon my sis fell in her bedroom racing to grab a phone call.

she is a kind, strong, celtic-viking Canadian retired RN.

she got herself up.

she is sore but otherwise unhurt.

this transplant recovery

business is not for sissies.

aflter this I prayed harder than I have ever before in my life.

God is good. It is a beautiful night.

bumps


successful kidney transplant 13 days ago

 

bumps primarily is my legs are still recovering post surgery

 

getting me vertcal is tough

I am 6 foot 2 inches and weigh 230 lbs

each day is better and I get stronger.

It is a great gift. I pray I deserve it.

smoothing and settling


tough day yesterday but thru we got. Today I feel stronger by the hour. All the new wrinkles, daily domestic stuff all smoothing into easier routine. Ten days since kidney transplant.

 

What I have learned is how well we had smoothed ou the life of dialysis. Very very smooth.

snap day at dialysis


things have not been going well and much of the trouble revolves around low blood pressures on my part….

for example, today when I came in it was quite low….this makes it impossible to remove fluid without lowering my bp significantly below 100, normal and perfect is 120. I have quite  few moments of low bp during dialysis and felt light headed at home and out in public after dialysis.

it seems to the nurses and I that my bp medication needs to be reduced….

when I asked them to call the on-call nepjrologist at Orillia Hospital, they said no.  There is no doctor on site at the Penetang Hospital since it is principally a geriatric facility and also seems to handle physio for new amputees, altho I havent seen many amputees in a few months so that may have been moved over to the hopsital in Midland.  If a patient gets into trouble, an ambulance is called and they are transported over to Midland Hospital.  We see a nephrologist once  month on site here at our clinic.  Next clinic is pushed late in February for some reason probably winter holidays, it will take place on Feb. 13th.

I have been feeling light headed and beginning to black out, to grey out my vision, a few times over this month.

The snap by me came when they decided not to call the on call nephrologist.   Instead they suggested I get a bp machine and start measuring my bp at home.  It is my conviction that we have enough data over a long enough time to ask a doctor.  In my sixth year of dialysis, I have lost my temper just twice.  This was the second time.   For some reason at the last monthly clinic the nurse preparing my chart failed to note this issue. I blew it as well by not recalling it.  My talk with the doctor had to do with elevated phosphorus and with figuring out a new heavier target weight, tricky to do immediately after the holiday feasting season.

The other moment when this bp problem might get addressed is on next Wednesday when the nephrology do a clinic rounds by telephone to the “satellite” clinics (Orillia is the main unit and there are some 6 smaller satellites including Penetang Hospital).

Sitting their seething was beneficial today, it raised my blood pressure.

Dialysis Monday


Holy fahrenheit,  this morning at 620 AM it was -23 Celsius with virtually no wind. Huge bright, fat moon hanging brightly in the sky as I took off in the car.  Drove to Penetang for my regularly scheduled dialysis, more about that schedule in a moment.   One hitch, I got the wrong disc from Season 1 of The Good Wife from the library on Saturday, one I had already viewed.  Drat.    Great series by the way.

The D run was smooth.  Generally I have been feeling better and that has persisted.  I have more energy.

I was asked yet again to switch my “fourth” run.  Starting this Thursday I will be going in first thing in the morning not at noon time.  This was to help out another patient who needed to change from the mornings.

Also for the next two weeks to accommodate Christmas Day and New Year’s Day, all the patients make mini-shifts.  My main difference is going in first thing on the next two Sundays.  Ho, Ho, HO.

Dialysis today


Hemodialysis today my third day in a row, smooth run, with a question about a schedule change.  I am currently going Monday, Wednesday and Friday for four hours per day starting at 715 am. Then a “4th” run on Tuesday afternoon.

The proposed change was to help out with another patient who is cutting back to one dialysis run per week and fits the schedule better on Tuesday afternoons.   So question was could I manage a change to Thursday afternoons.  I said I could do that but that I wanted an answer to one question.

“Who do I have to kill to do just one run a week?”

One of the dialysis nurses replied, “It’s just money, Bill. We just want money.”

Google trick for the day,  I looked up Old Tom Parr, who reputedly lived to the age of 152 in England.  i found a description of him in Pete Brown‘s book, Shakespeare’s Pub.

see http://en.wikipedia.org/wiki/Old_Tom_Parr

It’s a beautiful day.  We have had a long stretch of sunless days. so the sun is a happy visitor today.  Time to take a shot of the Bay.