Lessening the Suffering of Chronic Kidney Failure Patients Through Engagement

a realistic assessment of how renal patients struggle and feel

Engaging The Patient

Guest Contributor: Robert Bear

Patients with serious chronic diseases should not have to suffer needlessly, but many patients with advanced chronic kidney disease and end-stage renal disease do. They suffer, in part, because of the co-morbidities and clinical consequences of their disease. But mostly they suffer for other reasons: lacking sufficient knowledge about their disease and its history, they are afraid; finding it difficult to communicate meaningfully with their care providers, they feel alone; having to make difficult decisions they are unprepared for – including possibly choosing conservative care only – they feel anxious and bewildered; facing extraordinary lifestyle adjustments – sometimes including loss of employment and financial security – they feel vulnerable. Often, their life expectations have been upended. Many say they have lost dignity, feel a sense of hopelessness and wish for death.

Robert Bear Robert Bear

Care providers in, and leaders of, chronic kidney failure programs want to prevent…

View original post 455 more words


Author: William J. Gibson

62 year old - writer/photographer Canadian, survived open heart surgery, received kidney transplant, sometimes dour, sometimes amusing, over six feet in height, severely follicle challemged

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s