a few thoughts about dialysis

  • home dialysis is an option for many people, however in my case with five cats and one dog, it would be tough to keep things perfectly sterile and hygenic.
  • I find some days the time in the chair, the four hours of the run, almost unbearable, to the point where usually in the third hour I have the urge to yank out the lines and run screaming from the room, but I manage to fight it down and finish the run.
  • the diet is unrelenting, narrow and quite boring, my poor skill as a cook does not help with this problem
  • in one level of understanding, I realize that I am an out patient on life support but I don’t really feel all that sick at all, just trapped in a life necessary trap
  • I have noticed that the other dialysis patients have virtually no interest in talking, few do any reading, one talks on a cellphone, but the rest get by watching the tv sets that are provided in the clinic.
  • it is very difficult but not impossible to change your dialysis schedule to accomodate some special event.  last year I did this once to facilitate staying over for a university reunion, I had to make the request about 7 weeks before the event. I was lucky to get the change.
  • in Ontario, the waiting time for  a cadaverous kidney transplant is about 8 years. in my case I will be 63 years old when my turn may come.

Author: William J. Gibson

62 year old - writer/photographer Canadian, survived open heart surgery, received kidney transplant, sometimes dour, sometimes amusing, over six feet in height, severely follicle challemged

4 thoughts on “a few thoughts about dialysis”

  1. I could offer you some suggestions on diet and menus that you may enjoy. Are you diabetic? I would love the dialogue. It can be quite boring. I do chat with the people around me some. Many like to stay glued to the tv. I bring a laptop and go online. Thus my new blog. Started to prevent boredom.

    If you can, check out Davita.com. There are many good recipes there. I can give you pointers for simpler versions of many of the recipes.

    My three sons, 3, 5 and 9 keep me quite busy. They are my reason for not considering PD at this point.
    I am scared about a transplant. The idea of a strangers kidney in my body. I am dealing with it. I am going to call the transplant coordinator tomorrow and start the process. This after having been on dialysis for a year now.

    1. I am a type II diabetic. I will check out the site you mentioned. The dialysis clinic has a nutritionist and she has supplied a lot of foo information and some recipes. My problem is I have never been much of a cook. I need to dig in on that and acquire some skills.

  2. My husband and his father are both diabetic, so most of my recipes are both renal-friendly and diabetic-friendly.

    For example, Take a chicken breast and sprinkle it with Mrs Dash
    ( I like the southwest blend for this) stick it in an aluminum pan (3 for $1 at the Dollar Tree) and bake, while it bakes at 350, boil a cup of water for a side of egg noodles (or minute rice) and in a small skillet put 1 tablespoon of butter and a handful of frozen green beans, sprinkle with Mrs Dash

    In 1/2 hour you have a great dinner.

    For dessert, I like to do sugar free jello and whipped cream, or graham crackers with a little cream cheese on them with apple slices.

    Really if you tell me what you like to eat, I can help you find an easy way to prepare.

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